Over the weekend we have been informed of the sad news that John Borthwick has passed away. For those who didn’t know, John was a voluntary director for FRONTLINEdance for 19 years.
Born in Yorkshire, and at the age of 17, John had an accident that left him with a high-level spinal cord injury. John worked as a Computer programmer, Data analyst, Project manager, Business analyst, Business and Management consultant, Company Director and Non-Exec Director on NHS Trust. A job opportunity around 23 years ago, meant that he became resident in Stoke-on-Trent.
Rachael, our Artistic Director and Co-founder, met John through his National Spinal Cord Injury Care company – she went to work for him as a live-in carer in 2000. Luckily for Rachael, John had lots of experience setting up charities and businesses, so John helped Rachael and Mike set up FRONTLINEdance in 2001. He became FRONTLINEdance’s first voluntary director, a position he held until he became very unwell. He volunteered his time on many occasions for FRONTLINEdance and served terms as Treasurer and Chair. John was a constant support to Rachael for the 22 years that she knew him.
John did all of this alongside other voluntary work. This included being a non-executive director of NHS Primary Care Trusts, he’d been the chair of local disability charity, Disability Solutions, and a Patient Representative on two National Institute of Care Excellence (NICE) Guideline Development Groups.
From 1981-2014 he was the Trustee/Director of a national charity, Spinal Injuries Association where he served two three-year terms as national Chair and four three-year terms as Vice-Chair. The Spinal Injuries Association was very important to John. His first AGM with them was in 1974. He also gave his time and support to fellow spinal cord injured individuals; helping them fight for what they needed.
John has been such a great support to FRONTLINEdance since our story began. He will be greatly missed. FRONTLINEdance would like to send lots of love to John’s family and his other friends.
“In Dance and Parkinson’s practice and research, there is space for the disciplines of the arts, medicine, psychology, and neuroscience to converge. Interdependently, these different knowledge bases promote greater understanding of the meaning of health, health perception, and care in the lived experience of people with long-term neurological conditions such as Parkinson’s”
Dr Mel Brierley: My journey as a dance and health artist, researcher, and writer.
Everyday practice
For the last 11 years, I have worked as an independent community dance and health artist, researcher, and writer at Conscious Bodies. Previously, I had over 20 years of experience working in community and education settings, including primary and secondary schools, colleges of further education, and universities.
In groups, and one to one practice in the home, my aim is to explore and develop somatically informed dance practice with people living with a range of neurological conditions including, Parkinson’s, Dementias, Stroke, Limb-Girdle Muscular Dystrophy, Multiple Sclerosis, and Multiple System Atrophy. Somatically informed dance practice supports people to enjoy moving, to appreciate and love their bodies, to move with more awareness and ease, to find rest and peace, to support and understand others, and to use this knowledge in their activities of daily living.
Other areas of my practice include working with adults living with learning difficulties and physical disabilities, co-creating self-care workshops for support workers of young adults with Autism, exploring dance as self-care with adults, and working in connection with different art forms. For example, during the Covid-19 pandemic, with visual artist Philippa Troutman, I looked at the connections between our ageing bodies and our local, natural environments.
Artists, companies, and organisations that I currently work with are FRONTLINEdance in Stoke-On-Trent, Parkinson’s groups in Lancaster, Preston, and Chorley, LPM Dance Theatre in Lancaster, University of Central Lancashire in Preston, the Neurodropin in Lancaster, Pioneer Projects in Craven, and Moving Soma in Cheltenham.
Co-creative practice and production is at the heart of these partnerships, with all artists and organisations aiming to promote dance as support to people’s health and wellness.
A brief history of my dance experience with people with Parkinson’s.
In 2009, I assisted Daphne Cushnie, a senior neurological physiotherapist and dance artist working with people with Parkinson’s at the Lantern House in Ulverston, Cumbria. From the very first session, and like other dance artists, I was deeply moved by the commitment, joy, and love of dance expressed by participants with Parkinson’s.
Once the music started, and Daphne led some improvisational movement, including the throwing of large, pink, fluffy flamingos across the circle, class members began to laugh. They look relaxed, with their bodies more open. On the way out, people’s movement was less restricted. They talked and joked with each other, with this happier mood continuing in the café downstairs.
The effect of attending this initial class was so great, that I became committed to exploring dance with people with Parkinson’s. I continued to develop work as partner to Daphne in our Kendal-based class until February 2013, when I set up my session in Lancaster, with the Parkinson’s UK support group class continuing today.
In June 2012, and through Lisa Ullman Travelling Scholarships for dancers, Daphne and I journeyed together to attend a professional training weekend at Dance for PD®, Brooklyn, New York. We also co-delivered several presentations in the Northwest, and with the musician/movement practitioner Anna Gillespie, created workshops at People Dancing Summer schools.
With Daphne, I met other pioneering Dance and Parkinson’s practitioners in the UK. We shared practice in open and supportive ways, with the Dance and Parkinson’s Network eventually forming through our enthusiasm, commitments, and efforts.
The People Dancing website indicates that the ‘Network’ Dance and Parkinson’s UK was originally inspired and supported by Dance for PD® at the Mark Morris Dance Group in Brooklyn, New York. Specifically, it was through the encouragement and drive of two dancers David Leventhal (now director of Dance for PD®) and John Heginbotham who galvanised us into developing good practice for all Parkinson’s individuals and communities across the UK. They visited the UK when the company was touring, and Toby Beazley (then Director of Dance Umbrella) organised several events in London where we could work collectively with these trailblazers.
The UK ‘Network’ was driven forward in voluntary meetings and CPD events by a committed group of independent dance artists and advocates. There was also a large international gathering at Roehampton University, with annual summer school programmes and training at People Dancing.
Dance artists who met frequently were Joanne Duff, Amanda Fogg, Melanie Brierley, Daphne Cushnie, Sophia Hulbert, and Anna Leatherdale. Also joining this group were Fleur Derbyshire Fox (Director of Engagement at ENB) and members of Pavilion Dance Southwest.
Significant contributions were made earlier by Anna Gillespie, Marina Benini and Marion North in London, Mo Morgan in Edinburgh, Gemma Coldicott in London, RachelCanavan in Norwich and later, Danielle Teale in London.
Advocates at meetings included Toby Beazley (Director of Dance Umbrella), Ken Bartlett (Director of People Dancing), Sara Houston as chair from 2014 (University of Roehampton).
The ‘Network’ was later formalised as ‘Dance and Parkinson’s Partnerships UK’ under the director Kiki Gale, who until 2021, continued to develop the scope of practice of dance with people with Parkinson’s under the management and influence of People Dancing. In the UK, the partnership has flourished, with many dance artists and organisations reaching and working with Parkinson’s communities.
My Dance and Parkinson’s research
In my PhD research at the University of Roehampton (2020), I looked at one to one, co-creative, somatically informed, and home-based dance with people with Parkinson’s. For me, it was important to value and make clear the ideas of people with Parkinson’s in the work that we developed together. I continue to honour the wealth of knowledge and friendship exchanged in home-based dance sessions, with intimate, meaningful, and often humorous moments shared between us.
In 2014, I was awarded a Churchill Travelling Fellowship to research Dance and Parkinson’s practice in the US. In the first part of my Churchill journey, I spent nearly three weeks exploring the wonderful dance practice that takes place in classes at Dance for PD®.
I worked with the Parkinson’s movement coach Pamela Quinn, attending her classes, and interviewing her at home. We shared ideas about our approaches to one to one practice and spoke about Pam’s personal experience of living with Parkinson’s.
I also interviewed the somatic practitioners Dr Martha Eddy and Mary Abrams to discuss my use of somatically informed dance practice with people with Parkinson’s. Founder and director of Moving Body Resources in Manhattan, New York, Abrams is a leading figure in the study and practice of Continuum. Acknowledged for her pioneering work in Dynamic Embodiment, Martha Eddy has worked with US based Janet Hamburg (1951-2010). She also has knowledge of the Welsh movement practitioner Betty Meredith Jones (1908-1996), with both practitioners having focused their dance work with people with Parkinson’s.
In 2015, I continued my Churchill journey by visiting projects near Oakland, California. For the most part, I was very fortunate to work for three weeks with John Argue, an influential and highly experienced movement practitioner with people with Parkinson’s. I studied his ‘Art of Movement’ practice alongside his team of skilled dance and movement artists including Debbie Sternbach and Lynda Sheridan. I attended a range of other initiatives for people with Parkinson’s, including Yoga for Parkinson’s with Carol Fisher, Feldenkrais practice for Parkinson’s with Vivianna Diaz, and Dance for PD® registered programmes with the independent artist Claudine Naganuma and artists at the Berkeley Ballet Theatre.
So, what makes Dance and Parkinson’s practice important and meaningful?
Central to the new wave of dance and health in community settings, the developing field of Dance and Parkinson’s has a strong presence in the United Kingdom, with its practice and research making connections between the very often separate fields of the arts and medicine.
In Dance and Parkinson’s practice and research, there is space for the disciplines of the arts, medicine, psychology, and neuroscience to converge. Interdependently, these different knowledge bases promote greater understanding of the meaning of health, health perception, and care in the lived experience of people with long-term neurological conditions such as Parkinson’s.
Through face to face and online group sessions, or in one to one practice in the home, dance supports health and wellness when it flows through the person, shifting or transforming their physical, cognitive, emotional, spiritual, and social experience.
In Dance and Parkinson’s research, the multi-dimensional benefits of dance in supporting bio-psycho-social change are well documented. The term bio-psycho-social refers to the experience of the whole person as body and mind in a cultural, social, environmental, and ecological context.
Research has often focused on the way dance supports physical improvements to health in people with Parkinson’s, such as balancing, turning, and walking with even steps. In the dance class, physical change can happen on a macro or micro level. Large and observable change might come when people move from unsteadiness into balance. In dance classes, people might be able to maintain stability in standing, with their heels raised off the ground and arms outstretched or overhead. Similarly, they may be seen moving in space with greater fluidity when movement is accompanied by visualisations, descriptive words, or high groove, rhythmic music.
Smaller, movement changes are often sensed and felt internally by the person. Perhaps a sense of ease is found in the experience of bodily expansion and contraction created from the inhalation and exhalation of breath, or the gentle and gradual expansion of an arm, with these acts improving body awareness, motor control, and a body-felt, pleasurable movement experience.
Psychological health improvements including mood, confidence, identity, a sense of being able to do things and make contributions to your family and community, may also be driven by how people see themselves when they move or perform daily tasks. So, people’s physicality, or reduced physicality, can shape their thoughts. People’s thinking can also affect the way they move or think about moving. So, if they’re feeling confident, they’re more likely to have a go at dancing, walking outside, or going out to meet friends. The two viewpoints go hand in hand.
Dance supports people to forget about the things they can’t do and enjoy moving in their own way in the present moment. When people dance together, it’s even better, because dancing with other people supports physical, cognitive, and social confidence.
So, my advice is to keep on dancing! Especially with friends and family as often as possible.
Please feel free to join our range of classes at FRONTLINEdance, including my online session Moving Together.
Photo credit: Victoria Sedgwick Photography. The session is delivered by Dr Melanie Brierley with participants at the University of Lancashire, Preston through an LPM production and funded project.
In Patsy’s advocacy role she has worked in partnership with FRONTLINEdance and seen first-hand the huge difference this organisation makes in people’s lives; leading by example and providing opportunities for people to take part, developing skills, and growing in confidence as individuals and as creative artists.
Her recent ASD diagnosis has deepened her insight into her own autistic life and helped her to develop a greater understanding of some issues experienced by autistic individuals in terms of challenges, strengths and addressing stigma.
Patsy’s advocacy work over the last 30 years has focused on disabled people, supporting self-advocacy, and amplifying the voices of people. She advocates for equality and rights in both her personal and professional life, challenging negative attitudes and systematic inequalities in daily life, in the public arena and in her own neighbourhood.
Patsy is pleased to join this dynamic and creative organisation as a Voluntary Board Member (July 2021), and looks forward to supporting FRONTLINEdance to continue to grow and thrive. We look forward to all that Patsy can offer us, which is plentiful.
Moving Stories is a FRONTLINEdance community performance company who meet face to face, for creative, expressive, explorative, movement and dance sessions. Aimed at all age groups as we value the richness of intergenerational work and the value different ages can bring to a group and the individual. Suitable for all ability and experience levels, and of course like all our work, they are inclusive.
These sessions will usually see you co-creating themed based contemporary dance work with FRONTLINEdance’s Artistic Director, which are then ‘site-specifically’ performed. To date the group have performed at a number of local events and festivals including the Dignity Awards at NUL College, all the New Vic Theatre Live Age Festivals, and the Potteries Museum and Art Gallery.
Suzanne studied at Brian Rogers ‘Performers’ Dance College, from the age of 16. She then spent the next 14 years dancing and performing on T.V. and in theatres around the country and aboard.
Whilst pregnant with her first child Suzanne was offered work at the Blackpool Pleasure Beach offices, dealing with promotion and working independently at Blackpool Airport.
After having a break to bring up her two children, FRONTLINEdance opened up a new career path for Suzanne; completing a Level 2 Business and Administration course, an Inclusive Activity training programme, a trio of Supportive Community, Safeguarding training workshops and Parkinson’s training with Dr Melanie Brierley.
Suzanne is now enjoying her 6th year as Administrator & Operations, and loves being part of the FRONTLINEdance Team!
Thanks so much to everyone who has filled out Miaya, Isilda and Katies survey questions. There is still time if you haven’t done so already. We’d really appreciate it if you could find some time to complete;
FRONTLINEdance is urgently seeking applications for Voluntary Chair, Directors and members of the Board.Deadline: 30th June 2021. Appointments made on 8th July at our AGM
For FRONTLINEdance and the board to run efficiently and effectively, we require a range of skills from a diverse group of people. This means we are open for you to tell us what you can offers us as a director, a member or chair of the board. All positions our voluntary.
We need a mix of experience and skills, both professional and lived. We are looking for different types of people from different backgrounds, who believe in the work we do and want to help us not only to continue but to move forward. Enthusiasm for the work we do across, our key areas of Performance, Heath and Community, as well as having the time to dedicate to us is important.
So, if you have valuable knowledge and life experience, or other great skills that would provide balance to our board – apply now!
FRONTLINEdance is committed to inclusivity and diversity, and we actively encourage applications from people whose backgrounds are currently underrepresented in our board; specifically, people who identify as (d)Deaf and disabled and / or are ethnically diverse.
You can attend meetings via zoom, so you do not need to be local to FRONTLINEdance.
Helen started dancing at the age of 3 doing ballet, jazz and tap but around the age of 12 found a real love of Contemporary dance and went on to graduate in 1997 from The Laban Centre for Movement and Dance (now Trinity Laban) with a degree in Dance Theatre with a special interest in education.
Over the last twenty plus years Helen has performed in theatre and site-specific performances with several companies including ‘Attic’ in Plymouth and Micha Purucker’s ‘Dance Energy’ in Germany, taught dance workshops in education and community settings for people 6 months to 100 years old, worked as a Community & Education Officer and qualified as a Body Control Pilates Instructor.
After re locating from the South to Staffordshire 15 years ago Helen has continued to work as a community dance artist and alongside her work in schools has been enjoying leading community dance classes for the over 60’s and has become involved with Arts for Health, teaching movement sessions for older adults with depression and/or dementia in a hospital setting. Helen has also loved performing as a community dancer in 3 of ReStoke’s site specific performances, Palace (disused church), Expedition (promenade through streets) and Voyagers (disused swimming pool).
Helen became involved with FRONTLINEdance a couple of years ago and began leading some sessions for adult’s with neurological conditions. She also performed in, ‘Nest’ a short dance film by Welly O’Brien and Kate Marsh which was commissioned by FRONTLINEdance as part of the FAF festival.
Helen is excited to be involved with FRONTLINEdance and is looking forward to sharing ideas and having a fresh focus to help inform the next 20 years as a Community Dance Artist!
When not dancing Helen is kept busy with her two children, loves running and also making clothes. Over the recent pandemic whilst not being able to work fully Helen has been volunteering, collecting shopping and prescriptions for those isolating and helping at a vaccination centre.
Originally from Suffolk, Charlotte is a freelance dance artist based in Leeds, blending performing, teaching, creating and writing into her practice. She regularly teaches from children to adults as well as directs her own dance theatre company ACCA and edits a digital magazine, Artychoke. You can find her on Instagram here: @charr_arnold / @accacollab / @artychokezine and visit her website here: www.charlottearnold.co.uk
Katie is passionate about dance being for everyone and joined FRONTLINEdance in 2021. She has loved performing ‘The Explorers’, ‘Holding On’ and teaching on the Advanced Training Programme. From January 2025, Katie is joining FRONTLINEdance’s hospital facilitation team, making, performing and facilitating dance work in hospitals.
Katie is based in Birmingham. Since graduating from Trinity Laban with a First-Class degree in 2013 she has had the pleasure of working with companies such as: Turned on its Head, Made by Katie Green, Springs Dance Company, Sonia Sabri, Highly Sprung, Beyond Words Dance and as a Featured Dancer in the Commonwealth Games Opening Ceremony choreographed by Corey Baker.
Katie performs and facilitates dance in a range of settings and regularly performs in hospitals with Eek & Wild, a company she co-founded.